Blindness

What going blind taught me about humanity

Twenty-one years ago, when I was a young Labour MP, I wrote a piece in these pages about going blind. I described a rare degenerative eye condition called choroideremia, which shrinks and darkens one’s vision until eventually there’s nothing left. I started to see less in my late teens; by the time I wrote the piece in 2002 I was 33 and perhaps half-blind, but could still manage to do most things pretty well.  The daily differences were such, though, that people could tell there was something not quite right. I would do things – such as failing to see, and therefore to shake, an outstretched hand – which just

All hell breaks loose when our senses go haywire

Jesus is a Malteser. You might say I’m a liar or accuse me of the most egregious heresy, but the fact remains that Jesus is a Malteser. This is because I have a neurological quirk known as synaesthesia, commonly described as a fusing of the senses. Its most common manifestation prompts people to see colour when they hear music. But my version is the rare lexical-gustatory kind, which means that I can taste words; and so Jesus is a Malteser, Sam is tinned tuna and Donald is a rubber duck bobbing around in vinegar. This could seem nightmarish: life as a constant assault of rubber ducks and whiffy fish —

The tyranny of the visual

In 1450, the Duke of Urbino, Federico da Montefeltro, became monocular after losing vision in his right eye following a jousting accident. In order to improve the peripheral vision of his left eye, he had surgeons cut off the bridge of his nose. In Piero della Francesca’s 1472 portrait, the Duke is depicted in profile, so we can see that an equilateral triangle of flesh and bone has been chopped from what must have been an elegant aquiline beak. I have been more fortunate. In the past year I’ve had four operations at Moorfields Eye Hospital in London to repair a detached retina that made me blind in one eye.

The forgotten female composer fêted by Mozart and Haydn

A few years ago, I was sitting in the London Library researching a book about blind people across the ages. As a semi-blind person myself, I sighed at the lack of women, other than the endlessly chipper Helen Keller, who never had a bad day. Ever. My sister, however, drew my attention to a two-line wiki entry for the 18th-century composer, singer and professor — and darling of the Viennese musical court — Maria Theresia von Paradis (1759–1824). Ten years passed, and after many hours of research in libraries and chats with music scholars, we now find ourselves — to our utter amazement — co-writing a chamber opera about her

Unique and disturbing: Donmar Warehouse’s Blindness reviewed

Okay, I admit it. I have a girl crush on Juliet Stevenson. Ever since I first saw her in the 1990 film Truly, Madly, Deeply with Alan Rickman, I have loved her sexy, round and intelligent tones. Imagine how excited I was to discover, therefore, that you can have Juliet in your ear for a whole hour and 15 minutes while you sit through a so-called ‘sound installation’ — or rather an audio staging — of Blindness, the current offering at the Donmar Warehouse and the first opening since lockdown. Sitting in a darkened theatre studio, with strobe lighting and headphones, you are seated in your own space, and socially